UPDATED: Calling ALL Mesh Victims! The Anti-Mesh Marketing Campaign Needs Your Help!
September 14, 2014
UPDATED: Below main story September 17, 2014
#CleanUpYourMeshGovernment Accountability Office
Over the last several months I’ve had the privilege to speak with, correspond with and at times cry with victims and advocates trying to get the word out about the problems regarding transvaginal mesh. One thing I did notice is that all the stories are similar regardless of the maker of the device. And the other story that’s similar is that the companies are putting their #PRSpin on facts to justify the selling of the harmful device by putting profits before patients. Bayer and Johnson & Johnson are two easily cited examples but with #PRSPinUnSpun more facts than fiction are provided to help readers who may not know anyone hurt by mesh to understand what it’s doing to these women (and men, yes there are also men affected by mesh).
Some of the feedback I heard was that Johnson & Johnson gets more attention than the other companies in the media. In part they sold more devices; but, they’re still not getting enough media attention which means the other companies are getting even less. (Bayer, Bard, BostonScientific, American Medical Systems, and Coloplast0). I was also given some unlikely advice from an unlikely source that there are many companies that operate from a position of fraud and that I should branch out when it comes to fraud. That unlikely source may not be so happy that this campaign also includes accountability from the government: The FDA, TheDOJ, and the Government Accountability Office.
If you’ve read the “About” section of this site then you know I was wrongfully terminated from Johnson & Johnson. You’ll also know that is no longer “my” story as it’s “our” story. You’ll also see that I made at very good living working from Johnson & Johnson’s subsidiary Ethicon’s subsidiary Acclarent.
I state this to add context to my ability to successfully create a marketing campaign and when need be (which is now) the anti-marketing campaign. While at Acclarent, I was a rep for products known as Balloon Sinuplasty and the Stratus Microflow Spacer. I was also the only rep in the company who earned the privilege of creating a beta marketing test and provided a marketing intern for the course of the beta test. Much of the data obtained from the beta test I created was then rolled into another marketing program at Johnson & Johnson that’s still used nationally today.
And with that, the focus needs to encompass all the mesh victims and not just Johnson & Johnson’s. As with any good marketing campaign there needs to be a solid approach and with any good anti-marketing campaign there also needs to include #ForcedAccountability. I will say this was initially a little counter-intuitive ; but, quickly applying feedback and tweaking on the fly is part of what successful marketing is about. And now for the Anti-Mesh Marketing Campaign:
1 Uniting all mesh victims for greater media impact
2 Individual company accountability piece
#CleanUpYourMeshBard (if you’re a Bard victim)
#Clean Up YourMeshBayer (if you’re a Bayer victim)
#CleanUpYourMeshBostonScientific (if you’re a BostonScientific victim)
#CleanUpYourMeshJNJ (if you’re a Johnson & Johnson victim-JNJ is stock symbol-added bonus)
#CleanUpYour…should be the first thing in any tweet, social media post, or blog posting (with no spaces)
3 Goverment accountability piece
and this should be the second line of any tweet, social media post or blog posting (along with whatever link you want to your specific topic of the week (FDA Recall) or (Vicitm Story) etc.
Again, this Anti-Mesh Marketing Campaign only works if every memeber of every mesh group gets behind the campaign and does it exactly the same (no deviation) and that’s not ego talking it’s about:
creating awareness to the main cause (mesh) and attaching accountability (to the specific company)
creating awareness to the main cause (mesh) and attaching accountability (to the government)
If every mesh victim tweeted this just once a day (or say 60 times a day) then
the companies and FDA would have a tougher time ignoring the victims!
When typed into to the Twitter bar we just see me now-but we need everyone to #GetActive…
Wouldn’t it be great to have ALL the mesh companies and FDA trending on Twitter???
And help others by re-tweeting
And remember to link it back to petitions or boycotts
Awareness without action will fall flat.
Think about “Bring back our Girls” campaign vs. ALS Ice Bucket Challenge
one was tied to an action and much more successful
Note #’s are the first thing (this is an important step)
The FDA doesn’t think we can all work together and the companies don’t think we can all work together. Ladies (and gentlemen) let’s show them who they’re dealing with and #GetActive (People should never underestimate what a group of really pissed off injured woman can do!)
*If I’ve missed a mesh company in the list please (forgive me) and email me firstname.lastname@example.org Thanks!
And to those who may skeptically (and rightfully ask) what do I get out of of helping women when I’m not injured by mesh?
First I get to help a group of victims organize with #ForcedAccountability towards unethical companies and the government to try and create positive change.
Second, I am writing two books which expose corporate corruption and teach victims how with #ForcedAccountability they can protect themselves.
Third, when (not if-I have faith) this campaign is successful-I’d like to include this in the books as a way to teach other victims how not feel hopeless by a broken system.
UPDATED: September 17, 2014
For additional information regarding properly targeting for the Anti-Mesh Marketing Campaign
I’m sure Bayer visits the other sites often, this was a first for this page; and, I can no longer “tag” @Bayer in the pictures on Twitter. The beginning or #ForcedAccountabilityBayer? The ladies of Essure set it up Twitter Party but it’s great to get all mesh victims active this weekend to support each other while you make the individual company accountable. Remember to attach an action item to each tweet for greater impact (back to petitions, change.org, buycott campaigns, information, etc.). Anyone who needs help with tweeting please send me the links you’d like to have sent out on your organizations behalf. At the end of the day, I cannot fight with the people I am fighting for-you don’t have to agree with my methods or even like 100% of what I write-I am here to fight for all of you and not with you.
For those who refuse to recognize the difference, this is bigger than any one person’s problem or ego it is a collective problem of an industry that’s been allowed to run corrupt and kill children, harm women and reward executives for their illegal behavior. This is not just a mesh problem it is an industry world-wide problem. This site created a “# campaign” YOU ALL HAVE GIVEN IT A VOICE!
Each mesh group should reach out to at least one another organization to strengthen your voice to help tweet: Any Mom Blog or Consumer Blogs specific to your target company is a great choice. Mesh victims think about the consumer products your mesh company makes and target sites that also have a problem with the parent company.
Bayer on the Buycott site there is an anti Bayer campaign that has over 349,000 people. Check to see if they’ll add your campaign to theirs for greater reach.
JNJ Consumer goods Safe Cosmetic may offer to help since they had a campaign against JNJ during the cancer causing agents in baby products. Buycott site has 26,000 people signed up under an Anti-JNJ campaign (which I started and already added a section to get people to join the twitter campaign this weekend).
I’ll keep working to find the other mesh makers and add them (keep checking back)!
If anyone has other information to add please email me.
Also start working on your media releases that should go out Friday morning if you need help just let me know!